Aida Akitouris, mother of an 8-year-old patient: “My little daughter took up to 40 tablets a day.”

Aida Akitouris, mother of an 8-year-old patient: “My little daughter took up to 40 tablets a day.”

the Cystic fibrosis It is a hereditary disease Genetically This affects some Twenty children Of the total number of people born every year in Catalonia. There is no definitive cure and the main symptom is a very persistent cough obstacle Bronchial problems digestive The difficulties are increasing Pace. And in Spain as a whole, there is Between one and a half million and two million Of people who carry the gene.

to'Aida ActorssecretaryAssociation Against Cystic Fibrosis of Castile and León Candela's mother explained that her daughter “has a good quality of life because she has had access to a new line of… treatment Which stops Deterioration Of the disease”. Actors Sorry, but that's still one 30% are affected which they cannot reach.
Candela's mother explains that her daughter has “a lot Naturalized“The reality of suffering from this disease, even though for family members” means taking responsibility for care at home and teaching children how to live with the disease. chronic“.
Actors Highlights the environment As an essential component in supporting cystic fibrosis. He points out that it is important for a boy or girl who suffers from a chronic illness to be able, for example, to do something the school Healthy exercises they have to do daily to treat diseases.

Secretary of the Anti-Cystic Fibrosis Association of Castile and León celebrates Development What has been done in treating this disease: “In the past, there were very few people who reached puberty. Now, this has been achieved thanks to research and research.” planting“.

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